Before I begin this post, I want to thank everyone for their support as I go into my surgery tomorrow. Chris and I are so fortunate to have our community of family and friends, and we don't take that for granted.
Leaning Into the Good
Don’t worry, I’m still alive
"Are you still alive? The blog looks untouched in over a year so I'm thinking not." This was a message I received through my blog just a couple months ago. It was a bit jarring. To live with a disease where a year of silence may equate to death is a plausible and stark reality …
End of an Era. On to a New Chapter!
On Monday, May 4th, I received an email from U.C. Berkeley's Graduate Division that my thesis was accepted. I was on the edge of my seat holding back my burgeoning excitement. I assumed this was the email I had been waiting for since submitting my thesis a week ago to fulfill my final graduation requirement, …
End Well 2018: Talking about what it means to end well helps us all to live well
Essay Featured in the Washington Post – Please support NBTS so that more stories can be heard!
Honored to have my essay featured online and in today's print edition of the Washington Post, originally published in Pulse: voices from the heart of medicine. I wrote this essay before my recurrence, but it still captures the complexities of identity when faced with life-threatening illness. I would like to thank Diane Guernsey and Paul Gross from …
Thank You Carolyn
I know it has been a while since my last post, but I wanted to take a moment to honor and remember my friend Carolyn. Carolyn and I met when I first started my treatment at Dana Farber. I remember being incredibly nervous going into my first young adult support group session. I was still …
Medical School Decision!
Two years ago today, I started my first day of chemotherapy. This morning at Dana Farber, I received news that my most recent MRI is stable, and I can now extend my scans to every 4-6 months! While the exam room for my visit was the same, it was surreal to think how much has …
First Descents – learning to #OutLiveIt
Whenever I have trouble falling asleep, I focus in to that day on the river. Sitting in my kayak, I paddled as slow as possible, hoping that this moment would never end. I took every second I could to soak in the beauty around me: The tranquil flow of the Snake River, the ascending dry …
Gratitude
On November 5th, 2014, I left Indonesia for what was supposed to be a 3-week Thanksgiving vacation. As most of you know, this vacation turned into a rollercoaster of treatments and recovery for my recurrent brain tumor. Now, two years later, I write this on November 5th, 2016 during my first night in Sukadana, Kalimantan …
ACT NOW – Support the Affordable Care Act
It is no understatement to say that the Affordable Care Act (ACA) helped save my life. Since I was diagnosed with brain cancer at the age of 12, I have been an insurance liability. Living with cancer for more than half my life, I clearly fall into the category of someone with a “pre-existing condition.” …
Continue reading "ACT NOW – Support the Affordable Care Act"
Jeremy's Journey 