Living with brain cancer
Posts related to brain tumor advocacy
A month ago, I participated in a live radio show with CURETALKS about the latest in brain tumor treatments and trials. CURETALKS host, Priya Menon, moderated the segment that featured Dr. Nancy Ann Oberheim Bush from UCSF's Helen Diller Family Comprehensive Cancer Center. Along with my friend and patient advocate, Adam Hayden, I had the …
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Last week I returned from Iowa City, Iowa where I attended the Examined Life conference. Little did I know that Iowa City is one of the only UNESCO City's of Literature in the world! The Iowa Writer's Workshop at the University of Iowa pioneered the teaching of creative writing. Writers like Flannery O'Connor and John …
This year I am serving once again as a patient ambassador for EndWell. EndWell is an innovative symposium to transform the end-of-life into a more human-centered experience. My time with EndWell last year was transformational, and I look forward to participating in the conference again on December 5th. I recently wrote an article for the …
On March 20th, 2015, I walked into a cafe near MIT. It was a chilly afternoon, and I wore my beanie to keep my head warm after I lost all my hair following my proton beam radiation treatments. I was looking for a man named Steven Keating. A mutual friend of ours from the National …
This weekend I am honored to give the keynote speech to open the 16th Annual Young Adult Cancer Conference at Dana Farber. I have benefited immensely from this program, and cannot wait to join everyone tomorrow. My speech will be live-streamed at 9:15AM EST. You can follow via: DFCI webcast or going to the Young …
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Over the course of the past month, especially after writing my piece titled, "In Thinking About my Death, I Discovered How I Truly Wish to Live," I've heard through the grapevine that several friends are concerned I'm dying right now. To clear the air...I'm not. 😉 I can understand where this worry comes from. I …
A version of this post also appeared on Medium I sit here, exhausted, almost unable to write after my first round of immunotherapy and radiation treatments for my second recurrence of a high-grade anaplastic oligodendroglioma (read: brain cancer). I see my friends actively participating in our democratic process: campaigning, phone banking, getting out the vote. …
For months, I had two task reminders saved to my computer’s desktop. The note on the left side of the screen listed the assignments I still had to complete for school. The note on the right side of the screen read: “Fill out advance directive.” These notes were a daily reminder of my conflicting identities. The left-side version of me: a 26-year-old medical student with many opportunities ahead; the right-side version of me: a young adult living with terminal brain cancer.
Jeremy's Journey 