Why This Blog?

Vulnerability is scary. To share my story, and the complex emotions intertwined with my journey, is daunting. When I started this blog during my recurrence in 2014, it served as a platform to update my community spread across the globe. It was also a form of therapeutic reflection. Over time, I didn't expect the impact …

Latest in Brain Tumor Treatments and Trials – CURETALKS

A month ago, I participated in a live radio show with CURETALKS about the latest in brain tumor treatments and trials. CURETALKS host, Priya Menon, moderated the segment that featured Dr. Nancy Ann Oberheim Bush from UCSF's Helen Diller Family Comprehensive Cancer Center. Along with my friend and patient advocate, Adam Hayden, I had the …

CURE Contributor: When Living with Brain Cancer, Life Doesn’t Always Go as Planned

This article was originally published in CURE Magazine. Click HERE to go to the publication. I am happy to share that I am now a regular contributor for CURE. This may mean that a lot of my writing (aside from medical updates) will get shared on CURE or another publication before landing on my blog. …

One Year

A little more than one month ago, May 22nd, was my one-year anniversary since my brain surgery in 2018. It was the day I laid on the operating table, awake, as surgeons mapped out my brain's motor function and removed a section of my tumor. Since I was twelve years old, I’ve had several of these “anniversaries:”

Follow Live-stream: 2019 Dana Farber Young Adult Cancer Conference Keynote

This weekend I am honored to give the keynote speech to open the 16th Annual Young Adult Cancer Conference at Dana Farber. I have benefited immensely from this program, and cannot wait to join everyone tomorrow. My speech will be live-streamed at 9:15AM EST. You can follow via: DFCI webcast or going to the Young …