Why This Blog?

Vulnerability is scary. To share my story, and the complex emotions intertwined with my journey, is daunting. When I started this blog during my recurrence in 2014, it served as a platform to update my community spread across the globe. It was also a form of therapeutic reflection. Over time, I didn't expect the impact …

One Year

A little more than one month ago, May 22nd, was my one-year anniversary since my brain surgery in 2018. It was the day I laid on the operating table, awake, as surgeons mapped out my brain's motor function and removed a section of my tumor. Since I was twelve years old, I’ve had several of these “anniversaries:”

Follow Live-stream: 2019 Dana Farber Young Adult Cancer Conference Keynote

This weekend I am honored to give the keynote speech to open the 16th Annual Young Adult Cancer Conference at Dana Farber. I have benefited immensely from this program, and cannot wait to join everyone tomorrow. My speech will be live-streamed at 9:15AM EST. You can follow via: DFCI webcast or going to the Young …

Sick of Being Sick

I’m sick of being sick. I’m sick of laying on the couch. I’m sick of having to cancel plans I made months, weeks, or days in advance from grabbing a cup of coffee to going on spring break vacation. I’m sick of feeling good for a day or two, thinking I’m on the mend, only to realize I was being tricked. I’m sick of my doctors and I knowing what my symptoms are, but not knowing why. I’m sick of not knowing when I’ll feel better for a sustained amount of time.

Essay Featured in the Washington Post – Please support NBTS so that more stories can be heard!

Honored to have my essay featured online and in today's print edition of the Washington Post, originally published in Pulse: voices from the heart of medicine. I wrote this essay before my recurrence, but it still captures the complexities of identity when faced with life-threatening illness. I would like to thank Diane Guernsey and Paul Gross from …

Ho’omaika’i ana

Yesterday, my partner and I returned from a much-needed, relaxing trip to Oahu. We had an amazing time. Even though my hair started to fall out from my radiation treatments, my ever-present medical condition momentarily faded away. We slept...a lot; We rested at the pool, the beach, and back at the pool; We coasted around …