One Year

A little more than one month ago, May 22nd, was my one-year anniversary since my brain surgery in 2018. It was the day I laid on the operating table, awake, as surgeons mapped out my brain's motor function and removed a section of my tumor. Since I was twelve years old, I’ve had several of these “anniversaries:”

Follow Live-stream: 2019 Dana Farber Young Adult Cancer Conference Keynote

This weekend I am honored to give the keynote speech to open the 16th Annual Young Adult Cancer Conference at Dana Farber. I have benefited immensely from this program, and cannot wait to join everyone tomorrow. My speech will be live-streamed at 9:15AM EST. You can follow via: DFCI webcast or going to the Young …

Sick of Being Sick

I’m sick of being sick. I’m sick of laying on the couch. I’m sick of having to cancel plans I made months, weeks, or days in advance from grabbing a cup of coffee to going on spring break vacation. I’m sick of feeling good for a day or two, thinking I’m on the mend, only to realize I was being tricked. I’m sick of my doctors and I knowing what my symptoms are, but not knowing why. I’m sick of not knowing when I’ll feel better for a sustained amount of time.