Before I begin this post, I want to thank everyone for their support as I go into my surgery tomorrow. Chris and I are so fortunate to have our community of family and friends, and we don't take that for granted.
Leaning Into the Good
How Many Cans Do I Have Left to Kick?
This post is probably not going to be that well written because I'm honestly just tired. The past few days, a lot of stress has been building up as I approach my first chemotherapy treatment today. To those who are just finding out about this for the first time through my blog, I apologize, but …
Don’t worry, I’m still alive
"Are you still alive? The blog looks untouched in over a year so I'm thinking not." This was a message I received through my blog just a couple months ago. It was a bit jarring. To live with a disease where a year of silence may equate to death is a plausible and stark reality …
On Turning 30 Years Old: Living a life guided by my values
I never thought I would make it to my 30th birthday, but here I am! I don’t mean for this to be a grandiose statement, it’s simply fact. Over the past 18 years since I was diagnosed at the age of 12, I have gone through my first diagnosis followed by surgery, months in the …
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Update: MRI is Stable!
Yesterday I started my first day of work, and today my MRI is stable! A great start to the week. Going into today’s appointments, I was worried. My concern didn’t stem from any physical symptoms, but the fact that there was so much good going on in my life (despite COVID-19): Graduating with my masters, …
CURE Voices: When Living With Serious Illness, What is Considered Courageous?
As the new decade begins, I've reflected more on the meaning of courage as I embark on an enormous transition in my life.
Stable MRI and one year of infusions!
It has been a while since I last posted on my blog. At the beginning of the fall I started experimenting with Instagram to show my day to day life of living with brain cancer. You can follow my profile and check it out HERE. Also, this fall semester I have been balancing the fatigue …
One Year
A little more than one month ago, May 22nd, was my one-year anniversary since my brain surgery in 2018. It was the day I laid on the operating table, awake, as surgeons mapped out my brain's motor function and removed a section of my tumor. Since I was twelve years old, I’ve had several of these “anniversaries:”
Sick of Being Sick
I’m sick of being sick. I’m sick of laying on the couch. I’m sick of having to cancel plans I made months, weeks, or days in advance from grabbing a cup of coffee to going on spring break vacation. I’m sick of feeling good for a day or two, thinking I’m on the mend, only to realize I was being tricked. I’m sick of my doctors and I knowing what my symptoms are, but not knowing why. I’m sick of not knowing when I’ll feel better for a sustained amount of time.
Good News is Sometimes Hard to Share
I apologize that it has been almost two months since my last blog post. For many this online silence translated to concern for my well-being, and I am sorry that I made people worry. I haven’t written a post recently for several reasons. First, I wanted to spend the Holidays and my winter vacation focused …
Jeremy's Journey 