Rough Seas: Confronting the “experimental” aspects of experimental treatment

Note: Anything I share in posts related to my treatment are my own personal experience. It does not reflect what may happen to someone else, or what others should do. More so, I share these posts as a glimpse into my experience living with brain cancer. Hopefully there are parts of my story that resonate, areas …

The boy in the waiting room…why we need to support pediatric brain tumor research!

I am finally at the half-way point of my proton treatment, and besides some fatigue and hair-loss, I've been feeling pretty well.  Every day I have a similar treatment routine:  I take the T to Mass General (...usually while listening to a Spotify playlist made by my brother), take the elevators down to the Burr Proton …