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Living with brain cancer

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Tag: inspiration

Posted on December 7, 2018December 11, 2018

End Well 2018: Talking about what it means to end well helps us all to live well

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Posted on September 25, 2017March 26, 2018

Thank You Carolyn

I know it has been a while since my last post, but I wanted to take a moment to honor and remember my friend Carolyn. Carolyn and I met when I first started my treatment at Dana Farber. I remember being incredibly nervous going into my first young adult support group session. I was still …

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Posted on December 4, 2016March 26, 2018

First Descents – learning to #OutLiveIt

Whenever I have trouble falling asleep, I focus in to that day on the river. Sitting in my kayak, I paddled as slow as possible, hoping that this moment would never end. I took every second I could to soak in the beauty around me: The tranquil flow of the Snake River, the ascending dry …

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Posted on January 30, 2015March 26, 2018

Past Inspiration – Sunrise over Mt. Merapi

In the craziness of figuring out all of my medical treatments, I have forgotten to post Past Inspiration photos every Thursday.  This morning as the sun was rising on my way to another appointment, my mom and I passed a snowy field covered with a thick layer of fog.  It reminded me of my favorite …

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Posted on January 1, 2015March 26, 2018

Past Inspiration – Family photo at the waterfalls of central Bali

My family and I at my favorite place in Bali.  As we begin this new year, what gives me strength and hope is my family.  They are the ones who continue to inspire me to push forward and accomplish my new year's resolution - to open up to support and be vulnerable.

Posted on December 25, 2014March 26, 2018

Past Inspiration – Boys of Inle Lake, Myanmar

In my first post to my Past Inspiration photo series, I've chosen this photo of two boys passing by on their boat at Inle Lake in Myanmar during the end of my Luce scholarship year.  It reminds me to appreciate what I have, and to find joy everyday in life.  I hope you all have a …

Continue reading "Past Inspiration – Boys of Inle Lake, Myanmar"

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Country stars like @thetimmcgraw are part of the re-imagining end-of-life movement too! We’re all part of this movement because we all face mortality. Tim McGraw is partnering with @narushealth #endwell19 #country #countrymusic #mortality #hospice #cancer #collaboration #palliativecare #innovation #partnership
@meghanmccain talking about the loss of her father @senjohnmccain, dealing with mortality, and grief. As a brain cancer patient, thank you for sharing. #endwell19 #braincancer #grief #mortality #death #braincancerawareness
I’m excited to share that I am now a regular contributor for @curetoday, one of the largest cancer publications in the United States. I’m looking forward to this partnership and opportunity to reach a wider audience! Perhaps best of all is that I get to be animated😉! #bucketlist #cancer #braintumor #braincancer #cancerawareness #writing #writingcommunity
With all my treatments and medications it’s easy to get too fatigued to make a decent meal. I’ve been loosing weight recently, so my mom sent me @barilla protein-fortified pasta. I decided to add a ton of garlic, chicken, broccoli, and sauce to make a delicious high-carb, high-protein meal! #nutrition #braintumor #braincancer #cancer #pasta
Excited to serve as an ePatient Ambassador once again for @endwellsf. Last year was a transformational experience that inspired me to pursue palliative care advocacy, including rotations with an amazing pediatric palliative care attending. All families deserve palliative care. Link in bio to read the full article.
One year of immunotherapy infusions complete. People often ask me how many rounds I have left, and I don’t have an answer. In theory, the best case scenario is that I’ll receive these treatments every three weeks indefinitely since stopping means the treatment isn’t holding back my tumor.
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