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Living with brain cancer

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Tag: Iowa

Posted on November 1, 2019

The Examined Life Conference

Last week I returned from Iowa City, Iowa where I attended the Examined Life conference. Little did I know that Iowa City is one of the only UNESCO City's of Literature in the world! The Iowa Writer's Workshop at the University of Iowa pioneered the teaching of creative writing. Writers like Flannery O'Connor and John …

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With all my treatments and medications it’s easy to get too fatigued to make a decent meal. I’ve been loosing weight recently, so my mom sent me @barilla protein-fortified pasta. I decided to add a ton of garlic, chicken, broccoli, and sauce to make a delicious high-carb, high-protein meal! #nutrition #braintumor #braincancer #cancer #pasta
Excited to serve as an ePatient Ambassador once again for @endwellsf. Last year was a transformational experience that inspired me to pursue palliative care advocacy, including rotations with an amazing pediatric palliative care attending. All families deserve palliative care. Link in bio to read the full article. #EndWell19 #palliativecare #endoflife #pediatrics #medicine #innovation #braintumor #braincancer
One year of immunotherapy infusions complete. People often ask me how many rounds I have left, and I don’t have an answer. In theory, the best case scenario is that I’ll receive these treatments every three weeks indefinitely since stopping means the treatment isn’t holding back my tumor. Or, perhaps a better treatment comes along...🙏 So despite the fatigue, logistical constraints, and a whole host of other side effects, I’m grateful I’ve made it one year. #cancer #braincancer #braintumor #immunotherapy #grateful #anniversary
When the cancer fatigue starts to set in, I’ve learned to just let it happen. Don’t fight it. #fatigue #cancer
From being completely fatigued yesterday to working on my thesis at a cafe today. That’s the roller coaster of cancer treatment. #fatigue #cancer #cancertreatment #braincancer #braintumor #thesis #masters #gradschool
Yesterday, I moderated the monthly #btsm Twitter chat. This month’s topic was on Life Planning and Brain Tumors. I was glad Dr. Sumrall brought up the constraints of fatigue. As I post this, it’s almost 1pm and I slept past my alarm, missed my therapy appointment, and still trying to get out of bed. This is #fatigue. This is life with a #braintumor. The most frustrating aspect of fatigue is how random it can be. I planned to go to my therapy appointment and get a lot of my thesis work done today. Instead, I’ll be lucky to just get my meal prep finished. Plans vs. Fatigue. Today fatigue wins. #braincancer #cancer #fatigue #lifewithcancer #cancerlife #braintumorawareness #planscancelled #thesis #gradstudent
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