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Living with brain cancer

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Tag: MRI

Posted on October 24, 2019October 24, 2019

Stable MRI and one year of infusions!

It has been a while since I last posted on my blog. At the beginning of the fall I started experimenting with Instagram to show my day to day life of living with brain cancer. You can follow my profile and check it out HERE. Also, this fall semester I have been balancing the fatigue …

Continue reading "Stable MRI and one year of infusions!"

Posted on January 31, 2019February 1, 2019

Good News is Sometimes Hard to Share

I apologize that it has been almost two months since my last blog post. For many this online silence translated to concern for my well-being, and I am sorry that I made people worry. I haven’t written a post recently for several reasons. First, I wanted to spend the Holidays and my winter vacation focused …

Continue reading "Good News is Sometimes Hard to Share"

Posted on April 23, 2015March 26, 2018

Medical Update: Good News!

Scan days are always filled with a dose of anxiety.  I've had countless MRI scans over the past 11 years, and the angst has remained constant.  I don't have any problem with the MRI itself...in fact I have no problem falling asleep in the machine as I match the rhythms of the magnetic pulses to …

Continue reading "Medical Update: Good News!"

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Recent Posts

  • CURE Contributor: When Living with Brain Cancer, Life Doesn’t Always Go as Planned
  • The Examined Life Conference
  • 2019 EndWell ePatient Ambassador
  • Stable MRI and one year of infusions!
  • In Honor of Steven

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Country stars like @thetimmcgraw are part of the re-imagining end-of-life movement too! We’re all part of this movement because we all face mortality. Tim McGraw is partnering with @narushealth #endwell19 #country #countrymusic #mortality #hospice #cancer #collaboration #palliativecare #innovation #partnership
@meghanmccain talking about the loss of her father @senjohnmccain, dealing with mortality, and grief. As a brain cancer patient, thank you for sharing. #endwell19 #braincancer #grief #mortality #death #braincancerawareness
I’m excited to share that I am now a regular contributor for @curetoday, one of the largest cancer publications in the United States. I’m looking forward to this partnership and opportunity to reach a wider audience! Perhaps best of all is that I get to be animated😉! #bucketlist #cancer #braintumor #braincancer #cancerawareness #writing #writingcommunity @jvn should my animated self shave?
With all my treatments and medications it’s easy to get too fatigued to make a decent meal. I’ve been loosing weight recently, so my mom sent me @barilla protein-fortified pasta. I decided to add a ton of garlic, chicken, broccoli, and sauce to make a delicious high-carb, high-protein meal! #nutrition #braintumor #braincancer #cancer #pasta
Excited to serve as an ePatient Ambassador once again for @endwellsf. Last year was a transformational experience that inspired me to pursue palliative care advocacy, including rotations with an amazing pediatric palliative care attending. All families deserve palliative care. Link in bio to read the full article. #EndWell19 #palliativecare #endoflife #pediatrics #medicine #innovation #braintumor #braincancer
One year of immunotherapy infusions complete. People often ask me how many rounds I have left, and I don’t have an answer. In theory, the best case scenario is that I’ll receive these treatments every three weeks indefinitely since stopping means the treatment isn’t holding back my tumor. Or, perhaps a better treatment comes along...🙏 So despite the fatigue, logistical constraints, and a whole host of other side effects, I’m grateful I’ve made it one year. #cancer #braincancer #braintumor #immunotherapy #grateful #anniversary
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