From Pediatric to Young Adult Patient: The Importance of Advocating for Yourself

The following is a blog post I wrote for Dana Farber's blog, Insight, about the transition from pediatric to adult cancer care.  Thank you to Dana Farber for letting me share my thoughts with others. http://blog.dana-farber.org/insight/2015/09/from-pediatric-to-young-adult-patient-the-importance-of-advocating-for-yourself/ This weekend I will be participating in The Jimmy Fund Walk as part of the Dana Farber Young Adult …

The boy in the waiting room…why we need to support pediatric brain tumor research!

I am finally at the half-way point of my proton treatment, and besides some fatigue and hair-loss, I've been feeling pretty well.  Every day I have a similar treatment routine:  I take the T to Mass General (...usually while listening to a Spotify playlist made by my brother), take the elevators down to the Burr Proton …