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Living with brain cancer

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Tag: Transitions

Posted on January 23, 2020January 23, 2020

CURE Voices: When Living With Serious Illness, What is Considered Courageous?

As the new decade begins, I've reflected more on the meaning of courage as I embark on an enormous transition in my life.

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Recent Posts

  • CURE Voices: When Living With Serious Illness, What is Considered Courageous?
  • CURE Contributor: When Living with Brain Cancer, Life Doesn’t Always Go as Planned
  • The Examined Life Conference
  • 2019 EndWell ePatient Ambassador
  • Stable MRI and one year of infusions!

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Country stars like @thetimmcgraw are part of the re-imagining end-of-life movement too! We’re all part of this movement because we all face mortality. Tim McGraw is partnering with @narushealth #endwell19 #country #countrymusic #mortality #hospice #cancer #collaboration #palliativecare #innovation #partnership
@meghanmccain talking about the loss of her father @senjohnmccain, dealing with mortality, and grief. As a brain cancer patient, thank you for sharing. #endwell19 #braincancer #grief #mortality #death #braincancerawareness
I’m excited to share that I am now a regular contributor for @curetoday, one of the largest cancer publications in the United States. I’m looking forward to this partnership and opportunity to reach a wider audience! Perhaps best of all is that I get to be animated😉! #bucketlist #cancer #braintumor #braincancer #cancerawareness #writing #writingcommunity @jvn should my animated self shave?
With all my treatments and medications it’s easy to get too fatigued to make a decent meal. I’ve been loosing weight recently, so my mom sent me @barilla protein-fortified pasta. I decided to add a ton of garlic, chicken, broccoli, and sauce to make a delicious high-carb, high-protein meal! #nutrition #braintumor #braincancer #cancer #pasta
Excited to serve as an ePatient Ambassador once again for @endwellsf. Last year was a transformational experience that inspired me to pursue palliative care advocacy, including rotations with an amazing pediatric palliative care attending. All families deserve palliative care. Link in bio to read the full article. #EndWell19 #palliativecare #endoflife #pediatrics #medicine #innovation #braintumor #braincancer
One year of immunotherapy infusions complete. People often ask me how many rounds I have left, and I don’t have an answer. In theory, the best case scenario is that I’ll receive these treatments every three weeks indefinitely since stopping means the treatment isn’t holding back my tumor. Or, perhaps a better treatment comes along...🙏 So despite the fatigue, logistical constraints, and a whole host of other side effects, I’m grateful I’ve made it one year. #cancer #braincancer #braintumor #immunotherapy #grateful #anniversary
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