On November 5th, 2014, I left Indonesia for what was supposed to be a 3-week Thanksgiving vacation. As most of you know, this vacation turned into a rollercoaster of treatments and recovery for my recurrent brain tumor. Now, two years later, I write this on November 5th, 2016 during my first night in Sukadana, Kalimantan …
ACT NOW – Support the Affordable Care Act
It is no understatement to say that the Affordable Care Act (ACA) helped save my life. Since I was diagnosed with brain cancer at the age of 12, I have been an insurance liability. Living with cancer for more than half my life, I clearly fall into the category of someone with a “pre-existing condition.” …
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Who I ride for…Please Support the 2016 Boston Brain Tumor Ride
Over 300 stories. 300 unique experiences. Patients, survivors, family, friends...everyone in some way had a connection to the devastation caused by brain tumors. To sit in a room with these 300 people was humbling because they represented a web of countless others whose lives have been impacted by a brain tumor. Last week, I was in …
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Why I Ride…Please join and support the 2016 Boston Brain Tumor Ride!
Click HERE to join my team for the 2016 Boston Brain Tumor Ride! Yesterday I went to Dana Farber for my latest MRI scan. During the weeks leading up to the scan I was incredibly nervous. I have spent the past 3 months studying for the MCAT and preparing to apply for medical school. I …
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Done with treatment, MRI is “stable”… so what’s next?
Today marks a year since I started writing this blog. I made this blog with the intention of keeping everyone informed about my situation and hopefully give some insight into what it is like to go through this journey. While I haven't kept up with writing as much as I hoped, I am happy I …
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A Year Post-Diagnosis: Reflecting on privilege, equity, and our common humanity
This week I finished my last round of chemotherapy for a recurrent, inoperable brain tumor. It has been exactly a year since my doctor told me my cancer is back. I have been trying to reflect on this past year, searching for the right words to encapsulate my experience. What I keep coming back to …
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From Pediatric to Young Adult Patient: The Importance of Advocating for Yourself
The following is a blog post I wrote for Dana Farber's blog, Insight, about the transition from pediatric to adult cancer care. Thank you to Dana Farber for letting me share my thoughts with others. http://blog.dana-farber.org/insight/2015/09/from-pediatric-to-young-adult-patient-the-importance-of-advocating-for-yourself/ This weekend I will be participating in The Jimmy Fund Walk as part of the Dana Farber Young Adult …
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An Amazing Day at Fenway: Jimmy Fund Radio-Telethon
It was a day I will never forget! Yesterday, I had the amazing opportunity to participate in the Jimmy Fund's Radio-Telethon at Fenway to help raise money to strike out cancer at Dana Farber as well as raise awareness for the importance of supportive care services like Dana Farber's Young Adult Program. Over the two days, the …
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WEEI/NESN Jimmy Fund Radio-Telethon Promo
Below is a promo video that was aired the other day on NESN Live for the annual WEEI/NESN Jimmy Fund Radio-Telethon on August 18th and 19th. I'm honored to be participating in one of the largest fundraisers for the Jimmy Fund and Dana Farber. Tune in August 19th for the pre-game coverage on WEEI around 5pm as well as NESN …
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On the road again!
After being 6 months seizure free, I am finally back on the road! It has been a year since my first seizure in Singapore, and I've been fortunate to have no seizures since February. While it may seem minor, gaining the freedom to be able to drive again is a huge step towards regaining some …
Jeremy's Journey 