The boy in the waiting room…why we need to support pediatric brain tumor research!

I am finally at the half-way point of my proton treatment, and besides some fatigue and hair-loss, I've been feeling pretty well.  Every day I have a similar treatment routine:  I take the T to Mass General (...usually while listening to a Spotify playlist made by my brother), take the elevators down to the Burr Proton …

11 Years Later…What’s Changed…What Hasn’t? Please support Brain Tumor Research!

Please support the National Brain Tumor Society's Boston Brain Tumor Ride by donating to Team Jeremy Yesterday, 11 years ago, I stared up at the lights of the operating room at Mass General Hospital, counting down with the anesthesiologist as I was about to undergo brain surgery that would change the course of my life.  Most …

‘Serendipity’…a story of friendship and support

My best friend from Indonesia, Tya, wanted to learn how to use an animation program.  She chose to make her first video about our serendipitous friendship, as well as raise awareness about the National Brain Tumor Society's Boston Brain Tumor Ride.  Tya is helping organize a group of virtual riders who will participate in the ride …

Past (and current) Inspiration – Patriots Super Bowl Champions…a hopeful serendipity!

11 years ago, the Patriots won the Super Bowl just two weeks before my surgery.  A year into my successful recovery, the Patriots won again.  11 years later, and just a week before I begin treatment, the Patriots are Super Bowl champions...perhaps a hopeful serendipity?!  Hoping the pattern continues, and that next year I am …

Medical Update 3: On Feeling Powerless, Moving Forward, and my Treatment Plan

Since my last medical update, a lot has happened in a short amount of time.  I have been writing throughout the past week about what has been going on, so instead of separating it into different blog posts, I have put it all under one post with multiple sections: Part 1:  Written Wednesday, January 14th …