Uncharted Waters: waiting for a treatment plan

In my last post, Sailing New Seas: My Biopsy Results and The Need For a Cure, I recounted my experience receiving news that my tumor has evolved to a grade III anaplastic oligodendroglioma. Given this news, the path of treatment is uncertain. UCSF's tumor board had one recommendation while my doctors in Boston had an alternative view. Each opinion is equally reasonable. The difference lies in the fact that I am now in uncharted waters. There's no map navigating me to my destination. In fact, no one truly knows where we're heading. All I know after receiving my results was I needed to find a captain for my ship, so I headed back to Boston to see Yoda.

Sailing New Seas: My Biopsy Results and The Need For a Cure

On Monday, June 4th I had my neurooncology appointment at UCSF. Since being discharged from the hospital, my days have been pretty smooth: waking up, exercising a little, hitting an energy-wall, and relaxing. I mean how often do you get an excuse to binge-watch Netflix guilt free? As Monday approached though, I could feel the anxiety creeping throughout my body. It was the day I'd receive my biopsy results from the surgery.

Gratitude

On November 5th, 2014, I left Indonesia for what was supposed to be a 3-week Thanksgiving vacation. As most of you know, this vacation turned into a rollercoaster of treatments and recovery for my recurrent brain tumor. Now, two years later, I write this on November 5th, 2016 during my first night in Sukadana, Kalimantan …

Who I ride for…Please Support the 2016 Boston Brain Tumor Ride

Over 300 stories. 300 unique experiences. Patients, survivors, family, friends...everyone in some way had a connection to the devastation caused by brain tumors. To sit in a room with these 300 people was humbling because they represented a web of countless others whose lives have been impacted by a brain tumor. Last week, I was in …

The Boston Brain Tumor Ride is finally here: Help us reach our goal!

The weekend we've all been waiting for is finally here!  This Sunday is the Boston Brain Tumor Ride! We are so close to our goal of $30,000 that will help spark new research for the National Brain Tumor Society's Oligodendroglioma Research Fund and Pediatric Initiatives. Please help us reach our goal by following this link …

The Wacky Haircut for Brain Tumor Research…Thank you for Donating!!!

You Donated...And I got a pretty wacky haircut because of it! In just one week, we raised $2,014.36 towards brain tumor research (...and a wacky haircut)!!! Here's the new hairdo: A BIG thank you to "Eddie" Eduardo Tramontozzi for offering your wonderful artistic talent and time to the most stylish monk-cut I have ever seen!  …