Little White Dot (3/3/23) On January 31st, I had an MRI that revealed what looked like a little white dot. This spot was seen on scans used with contrast, meaning something was going on there that involved blood. The worst-case scenario was that this spot was an area of “enhancing tumor,” or tumor recruiting my …
Snooze
A brief reflection on my current energy level and the tug and pull between logic and emotions
F&#K This Can
It was over a year ago when I wrote my last post to commemorate my 30th birthday. In that blog on August 21st, 2021, I mentioned a possible recurrence. A small spot appearing on the MRI scans that could have been either tumor or scar tissue. And then I left you hanging… I’m sorry about …
On Turning 30 Years Old: Living a life guided by my values
I never thought I would make it to my 30th birthday, but here I am! I don’t mean for this to be a grandiose statement, it’s simply fact. Over the past 18 years since I was diagnosed at the age of 12, I have gone through my first diagnosis followed by surgery, months in the …
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Gratitude
On November 5th, 2014, I left Indonesia for what was supposed to be a 3-week Thanksgiving vacation. As most of you know, this vacation turned into a rollercoaster of treatments and recovery for my recurrent brain tumor. Now, two years later, I write this on November 5th, 2016 during my first night in Sukadana, Kalimantan …
Who I ride for…Please Support the 2016 Boston Brain Tumor Ride
Over 300 stories. 300 unique experiences. Patients, survivors, family, friends...everyone in some way had a connection to the devastation caused by brain tumors. To sit in a room with these 300 people was humbling because they represented a web of countless others whose lives have been impacted by a brain tumor. Last week, I was in …
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Why I Ride…Please join and support the 2016 Boston Brain Tumor Ride!
Click HERE to join my team for the 2016 Boston Brain Tumor Ride! Yesterday I went to Dana Farber for my latest MRI scan. During the weeks leading up to the scan I was incredibly nervous. I have spent the past 3 months studying for the MCAT and preparing to apply for medical school. I …
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Moving forward during treatment: the difficulties of finding an appropriate balance
The following post may seem rather all over the place since it was written while all of these thoughts were swirling around my head. I contemplated rewriting a more refined summary of what you’ll read below, but ultimately I decided that posting the raw version reveals more about what going through this experience is actually …
Boston Brain Tumor Ride Speech
For the last day of May and Brain Tumor Awareness Month, I wanted to share my speech I gave at the Boston Brain Tumor Ride 2 weeks ago. Thank you again to everyone who made the ride such a memorable day. Here is the VIDEO And here is the text: "Hello Everyone, I’m honored to …
What Life’s All About
The Boston Brain Tumor Ride last Sunday could not have been a better day. It wasn't just the beautiful weather, scenic bike routes, festive environment, or the fact that I received two Red Sox tickets afterwards. No...what made Sunday a day I will never forget is all of my family, friends, and community who came together …