Before I begin this post, I want to thank everyone for their support as I go into my surgery tomorrow. Chris and I are so fortunate to have our community of family and friends, and we don't take that for granted.
Leaning Into the Good
How Many Cans Do I Have Left to Kick?
This post is probably not going to be that well written because I'm honestly just tired. The past few days, a lot of stress has been building up as I approach my first chemotherapy treatment today. To those who are just finding out about this for the first time through my blog, I apologize, but …
Don’t worry, I’m still alive
"Are you still alive? The blog looks untouched in over a year so I'm thinking not." This was a message I received through my blog just a couple months ago. It was a bit jarring. To live with a disease where a year of silence may equate to death is a plausible and stark reality …
How do I choose…
Little White Dot (3/3/23) On January 31st, I had an MRI that revealed what looked like a little white dot. This spot was seen on scans used with contrast, meaning something was going on there that involved blood. The worst-case scenario was that this spot was an area of “enhancing tumor,” or tumor recruiting my …
Snooze
A brief reflection on my current energy level and the tug and pull between logic and emotions
Choosing Limbo?
Transitions I just took my first sip of a latte at one of my favorite cafes in Brookline. My first coffee shop trip since surgery! Coffee shops, with their ambient noise (and of course endless array of pastries and coffee), are my favorite places to write. And if you have put one and two together, …
Some good news before surgery (and ways to help)
Before I start this post, I want to say thank you for all the kind words. Please know I have read every comment and text, even if I haven't had the capacity to respond. I hope we can connect following my surgery. For over a month I have been practicing how to brush my teeth, …
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F&#K This Can
It was over a year ago when I wrote my last post to commemorate my 30th birthday. In that blog on August 21st, 2021, I mentioned a possible recurrence. A small spot appearing on the MRI scans that could have been either tumor or scar tissue. And then I left you hanging… I’m sorry about …
On Turning 30 Years Old: Living a life guided by my values
I never thought I would make it to my 30th birthday, but here I am! I don’t mean for this to be a grandiose statement, it’s simply fact. Over the past 18 years since I was diagnosed at the age of 12, I have gone through my first diagnosis followed by surgery, months in the …
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Sailing New Seas: My Biopsy Results and The Need For a Cure
On Monday, June 4th I had my neurooncology appointment at UCSF. Since being discharged from the hospital, my days have been pretty smooth: waking up, exercising a little, hitting an energy-wall, and relaxing. I mean how often do you get an excuse to binge-watch Netflix guilt free? As Monday approached though, I could feel the anxiety creeping throughout my body. It was the day I'd receive my biopsy results from the surgery.
Jeremy's Journey 