I am finally at the half-way point of my proton treatment, and besides some fatigue and hair-loss, I've been feeling pretty well. Every day I have a similar treatment routine: I take the T to Mass General (...usually while listening to a Spotify playlist made by my brother), take the elevators down to the Burr Proton …
Wacky Haircut Fundraiser for Brain Tumor Research!
Update: 1 day to go! Halfway through proton treatment, and the time has come...for the hair to go! This is a common side effect of the proton treatments since the hair follicles receive a high dose of radiation. The skin has started to get a bit more irritated, and this week the first of many …
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Melting Chocolate…an emotional struggle with cancer
I am currently two weeks through treatment, and besides some stomach issues and fatigue, I'm actually feeling pretty well. While I undergo proton therapy, I am living in an apartment in Cambridge in the same building where my dad is, making it really easy to get to my treatments every day. It has been nice …
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11 Years Later…What’s Changed…What Hasn’t? Please support Brain Tumor Research!
Please support the National Brain Tumor Society's Boston Brain Tumor Ride by donating to Team Jeremy Yesterday, 11 years ago, I stared up at the lights of the operating room at Mass General Hospital, counting down with the anesthesiologist as I was about to undergo brain surgery that would change the course of my life. Most …
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Medical Update 4: Day 1…Treatment Begins
Nothing like a cold blizzard to start off my first day of treatment! Today was my first day of proton therapy at Massachusetts General Hospital's Burr Proton Center, the first place in the world to perform proton therapy on patients. It started at Harvard, and was later moved to MGH...but needless to say, they are the experts! …
‘Serendipity’…a story of friendship and support
My best friend from Indonesia, Tya, wanted to learn how to use an animation program. She chose to make her first video about our serendipitous friendship, as well as raise awareness about the National Brain Tumor Society's Boston Brain Tumor Ride. Tya is helping organize a group of virtual riders who will participate in the ride …
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Past (and current) Inspiration – Patriots Super Bowl Champions…a hopeful serendipity!
11 years ago, the Patriots won the Super Bowl just two weeks before my surgery. A year into my successful recovery, the Patriots won again. 11 years later, and just a week before I begin treatment, the Patriots are Super Bowl champions...perhaps a hopeful serendipity?! Hoping the pattern continues, and that next year I am …
Past Inspiration – Sunrise over Mt. Merapi
In the craziness of figuring out all of my medical treatments, I have forgotten to post Past Inspiration photos every Thursday. This morning as the sun was rising on my way to another appointment, my mom and I passed a snowy field covered with a thick layer of fog. It reminded me of my favorite …
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Calling all riders…join “Team Jeremy” to support brain tumor research!
Calling All Bike Riders!!! For the past 10 years, the Boston Brain Tumor Bike Ride has been a way for me to give thanks for all of the support that I have received since my original diagnosis in 2004. It has also been a way for me to give back and raise funds so that …
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Medical Update 3: On Feeling Powerless, Moving Forward, and my Treatment Plan
Since my last medical update, a lot has happened in a short amount of time. I have been writing throughout the past week about what has been going on, so instead of separating it into different blog posts, I have put it all under one post with multiple sections: Part 1: Written Wednesday, January 14th …
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