I haven't posted any updates recently because I have been feeling pretty fatigued from the proton therapy treatments, but I wanted to check in so that everyone knew that I am doing well...and bald (a.k.a. no longer have the ridiculous monk-cut). The fatigue is a normal side-effect from the proton treatments. I've been experiencing two …
The Wacky Haircut for Brain Tumor Research…Thank you for Donating!!!
You Donated...And I got a pretty wacky haircut because of it! In just one week, we raised $2,014.36 towards brain tumor research (...and a wacky haircut)!!! Here's the new hairdo: A BIG thank you to "Eddie" Eduardo Tramontozzi for offering your wonderful artistic talent and time to the most stylish monk-cut I have ever seen! …
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The boy in the waiting room…why we need to support pediatric brain tumor research!
I am finally at the half-way point of my proton treatment, and besides some fatigue and hair-loss, I've been feeling pretty well. Every day I have a similar treatment routine: I take the T to Mass General (...usually while listening to a Spotify playlist made by my brother), take the elevators down to the Burr Proton …
Wacky Haircut Fundraiser for Brain Tumor Research!
Update: 1 day to go! Halfway through proton treatment, and the time has come...for the hair to go! This is a common side effect of the proton treatments since the hair follicles receive a high dose of radiation. The skin has started to get a bit more irritated, and this week the first of many …
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Melting Chocolate…an emotional struggle with cancer
I am currently two weeks through treatment, and besides some stomach issues and fatigue, I'm actually feeling pretty well. While I undergo proton therapy, I am living in an apartment in Cambridge in the same building where my dad is, making it really easy to get to my treatments every day. It has been nice …
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11 Years Later…What’s Changed…What Hasn’t? Please support Brain Tumor Research!
Please support the National Brain Tumor Society's Boston Brain Tumor Ride by donating to Team Jeremy Yesterday, 11 years ago, I stared up at the lights of the operating room at Mass General Hospital, counting down with the anesthesiologist as I was about to undergo brain surgery that would change the course of my life. Most …
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Medical Update 4: Day 1…Treatment Begins
Nothing like a cold blizzard to start off my first day of treatment! Today was my first day of proton therapy at Massachusetts General Hospital's Burr Proton Center, the first place in the world to perform proton therapy on patients. It started at Harvard, and was later moved to MGH...but needless to say, they are the experts! …
Calling all riders…join “Team Jeremy” to support brain tumor research!
Calling All Bike Riders!!! For the past 10 years, the Boston Brain Tumor Bike Ride has been a way for me to give thanks for all of the support that I have received since my original diagnosis in 2004. It has also been a way for me to give back and raise funds so that …
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Medical Update 3: On Feeling Powerless, Moving Forward, and my Treatment Plan
Since my last medical update, a lot has happened in a short amount of time. I have been writing throughout the past week about what has been going on, so instead of separating it into different blog posts, I have put it all under one post with multiple sections: Part 1: Written Wednesday, January 14th …
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Medical Update 2: A Big Decision
It has been quite a while since my last medical update because over the past month not a lot has moved forward, until now. In this update I will try to summarize the most recent progression in my medical situation. In addition, at the end of this post, I will provide some more detailed information for my medically …