Living with brain cancer
The weekend we've all been waiting for is finally here! This Sunday is the Boston Brain Tumor Ride! We are so close to our goal of $30,000 that will help spark new research for the National Brain Tumor Society's Oligodendroglioma Research Fund and Pediatric Initiatives. Please help us reach our goal by following this link …
Continue reading "The Boston Brain Tumor Ride is finally here: Help us reach our goal!"
Scan days are always filled with a dose of anxiety. I've had countless MRI scans over the past 11 years, and the angst has remained constant. I don't have any problem with the MRI itself...in fact I have no problem falling asleep in the machine as I match the rhythms of the magnetic pulses to …
It is exactly one month until the 2015 Boston Brain Tumor Ride!!! So far we have 29 riders signed up on our team, and have raised over $16,000! Thank you to everyone who has already contributed to the ride. Our goal is to raise $20,000, but I know we can raise even more. Please consider signing …
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Here is another post I wrote about a month ago while half-way through radiation treatment. I didn't want to make many changes to it after the fact, so I apologize if it comes off as a bit of rambling...just blame the fatigue 😉 Just a couple weeks after finding out about my recurrence, a friend …
Continue reading "Long-term thinking vs. focusing on the present…cancer as a young adult"
Throughout my radiation treatments I took some time to do some writing. Now that I am starting to get some energy back and feel myself again, I wanted to post what I had written. I wrote the following post about a month ago at the half-way point of my radiation treatments: On New Year’s Day, …
Everyone has been asking me how does it feel to be done with radiation...Are you excited to be done? I don't really know how to answer. It's strange. I'm finishing the first major step of my treatment, and after 6 weeks of going in for radiation 5 days a week, I can finally move on to a …
Continue reading "Radiation Complete…Gratitude and Next Steps"
I haven't posted any updates recently because I have been feeling pretty fatigued from the proton therapy treatments, but I wanted to check in so that everyone knew that I am doing well...and bald (a.k.a. no longer have the ridiculous monk-cut). The fatigue is a normal side-effect from the proton treatments. I've been experiencing two …
You Donated...And I got a pretty wacky haircut because of it! In just one week, we raised $2,014.36 towards brain tumor research (...and a wacky haircut)!!! Here's the new hairdo: A BIG thank you to "Eddie" Eduardo Tramontozzi for offering your wonderful artistic talent and time to the most stylish monk-cut I have ever seen! …
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I am finally at the half-way point of my proton treatment, and besides some fatigue and hair-loss, I've been feeling pretty well. Every day I have a similar treatment routine: I take the T to Mass General (...usually while listening to a Spotify playlist made by my brother), take the elevators down to the Burr Proton …
Update: 1 day to go! Halfway through proton treatment, and the time has come...for the hair to go! This is a common side effect of the proton treatments since the hair follicles receive a high dose of radiation. The skin has started to get a bit more irritated, and this week the first of many …
Continue reading "Wacky Haircut Fundraiser for Brain Tumor Research!"
