Who I ride for…Please Support the 2016 Boston Brain Tumor Ride

Over 300 stories. 300 unique experiences. Patients, survivors, family, friends...everyone in some way had a connection to the devastation caused by brain tumors. To sit in a room with these 300 people was humbling because they represented a web of countless others whose lives have been impacted by a brain tumor. Last week, I was in …

A Year Post-Diagnosis: Reflecting on privilege, equity, and our common humanity

This week I finished my last round of chemotherapy for a recurrent, inoperable brain tumor.  It has been exactly a year since my doctor told me my cancer is back.  I have been trying to reflect on this past year, searching for the right words to encapsulate my experience.  What I keep coming back to …

Long-term thinking vs. focusing on the present…cancer as a young adult

Here is another post I wrote about a month ago while half-way through radiation treatment.  I didn't want to make many changes to it after the fact, so I apologize if it comes off as a bit of rambling...just blame the fatigue  😉 Just a couple weeks after finding out about my recurrence, a friend …

The boy in the waiting room…why we need to support pediatric brain tumor research!

I am finally at the half-way point of my proton treatment, and besides some fatigue and hair-loss, I've been feeling pretty well.  Every day I have a similar treatment routine:  I take the T to Mass General (...usually while listening to a Spotify playlist made by my brother), take the elevators down to the Burr Proton …