When the can doesn’t land as far as you hoped – another recurrence

Introduction: Living with brain cancer I always told people it was a matter of "When" not "If" my tumor would start growing again. It was one of the few certainties in a journey of uncertainty. During my recurrence in 2014, my tumor extended into the motor strip making a complete resection impossible. I had to …

Gratitude

On November 5th, 2014, I left Indonesia for what was supposed to be a 3-week Thanksgiving vacation. As most of you know, this vacation turned into a rollercoaster of treatments and recovery for my recurrent brain tumor. Now, two years later, I write this on November 5th, 2016 during my first night in Sukadana, Kalimantan …

Who I ride for…Please Support the 2016 Boston Brain Tumor Ride

Over 300 stories. 300 unique experiences. Patients, survivors, family, friends...everyone in some way had a connection to the devastation caused by brain tumors. To sit in a room with these 300 people was humbling because they represented a web of countless others whose lives have been impacted by a brain tumor. Last week, I was in …

A Year Post-Diagnosis: Reflecting on privilege, equity, and our common humanity

This week I finished my last round of chemotherapy for a recurrent, inoperable brain tumor.  It has been exactly a year since my doctor told me my cancer is back.  I have been trying to reflect on this past year, searching for the right words to encapsulate my experience.  What I keep coming back to …