Living with brain cancer
On Monday, June 4th I had my neurooncology appointment at UCSF. Since being discharged from the hospital, my days have been pretty smooth: waking up, exercising a little, hitting an energy-wall, and relaxing. I mean how often do you get an excuse to binge-watch Netflix guilt free? As Monday approached though, I could feel the anxiety creeping throughout my body. It was the day I'd receive my biopsy results from the surgery.
Over 300 stories. 300 unique experiences. Patients, survivors, family, friends...everyone in some way had a connection to the devastation caused by brain tumors. To sit in a room with these 300 people was humbling because they represented a web of countless others whose lives have been impacted by a brain tumor. Last week, I was in …
Continue reading "Who I ride for…Please Support the 2016 Boston Brain Tumor Ride"
Click HERE to join my team for the 2016 Boston Brain Tumor Ride! Yesterday I went to Dana Farber for my latest MRI scan. During the weeks leading up to the scan I was incredibly nervous. I have spent the past 3 months studying for the MCAT and preparing to apply for medical school. I …
Continue reading "Why I Ride…Please join and support the 2016 Boston Brain Tumor Ride!"
Today marks a year since I started writing this blog. I made this blog with the intention of keeping everyone informed about my situation and hopefully give some insight into what it is like to go through this journey. While I haven't kept up with writing as much as I hoped, I am happy I …
Continue reading "Done with treatment, MRI is “stable”… so what’s next?"
I am currently two weeks through treatment, and besides some stomach issues and fatigue, I'm actually feeling pretty well. While I undergo proton therapy, I am living in an apartment in Cambridge in the same building where my dad is, making it really easy to get to my treatments every day. It has been nice …
Continue reading "Melting Chocolate…an emotional struggle with cancer"
Please support the National Brain Tumor Society's Boston Brain Tumor Ride by donating to Team Jeremy Yesterday, 11 years ago, I stared up at the lights of the operating room at Mass General Hospital, counting down with the anesthesiologist as I was about to undergo brain surgery that would change the course of my life. Most …
Continue reading "11 Years Later…What’s Changed…What Hasn’t? Please support Brain Tumor Research!"
Nothing like a cold blizzard to start off my first day of treatment! Today was my first day of proton therapy at Massachusetts General Hospital's Burr Proton Center, the first place in the world to perform proton therapy on patients. It started at Harvard, and was later moved to MGH...but needless to say, they are the experts! …
My best friend from Indonesia, Tya, wanted to learn how to use an animation program. She chose to make her first video about our serendipitous friendship, as well as raise awareness about the National Brain Tumor Society's Boston Brain Tumor Ride. Tya is helping organize a group of virtual riders who will participate in the ride …
Continue reading "‘Serendipity’…a story of friendship and support"
Calling All Bike Riders!!! For the past 10 years, the Boston Brain Tumor Bike Ride has been a way for me to give thanks for all of the support that I have received since my original diagnosis in 2004. It has also been a way for me to give back and raise funds so that …
Continue reading "Calling all riders…join “Team Jeremy” to support brain tumor research!"
Since my last medical update, a lot has happened in a short amount of time. I have been writing throughout the past week about what has been going on, so instead of separating it into different blog posts, I have put it all under one post with multiple sections: Part 1: Written Wednesday, January 14th …
Continue reading "Medical Update 3: On Feeling Powerless, Moving Forward, and my Treatment Plan"
