Living with brain cancer
Calling All Bike Riders!!! For the past 10 years, the Boston Brain Tumor Bike Ride has been a way for me to give thanks for all of the support that I have received since my original diagnosis in 2004. It has also been a way for me to give back and raise funds so that …
Continue reading "Calling all riders…join “Team Jeremy” to support brain tumor research!"
Since my last medical update, a lot has happened in a short amount of time. I have been writing throughout the past week about what has been going on, so instead of separating it into different blog posts, I have put it all under one post with multiple sections: Part 1: Written Wednesday, January 14th …
Continue reading "Medical Update 3: On Feeling Powerless, Moving Forward, and my Treatment Plan"
It has been quite a while since my last medical update because over the past month not a lot has moved forward, until now. In this update I will try to summarize the most recent progression in my medical situation. In addition, at the end of this post, I will provide some more detailed information for my medically …
My family and I at my favorite place in Bali. As we begin this new year, what gives me strength and hope is my family. They are the ones who continue to inspire me to push forward and accomplish my new year's resolution - to open up to support and be vulnerable.
Just after finding out about the cancer, I felt numb. I paced back and forth as my mom paid for the parking in the Dana Farber garage. When I got into the car, I broke down in tears, managing to mumble to my mom... "I'm sorry." I know I didn't need to apologize for what …
Continue reading "Opening up to Support and Vulnerability – my new year’s resolution"
One of the most difficult aspects of dealing with this experience is waiting. It has been about a month now since I found out about the tumor, and I still do not know what the next steps will be. We are still waiting on the results of my functional MRI to determine if surgery is possible, …
My doctor has a tell when she has bad news. She will start telling stories to help calm down the mood, but in reality it elongates the anxiety. A couple weeks into my first visit back from Indonesia, I had my annual MRI appointment at Dana Farber. As my doctor was talking, my heart was pounding, and I could tell my mom was uneasy. A few minutes later my doctor told us the bad news: There has been significant tumor growth in the area of my brain where I had my previous tumor removed 11 years ago.
Jeremy's Journey 