Discharged!

72 hours after an awake brain surgery, somehow we're out the door, with a cane, and on our way to outpatient recovery! Lot's of rehab (and sleep) ahead, but tremendously thankful to my family and the UCSF medical team (especially my surgeon Dr. Hervey-Jumper and the amazing nurses)! I'll write later about this surreal experience …

How to Help

I am writing this the night before going into surgery, so before you read below on ways to help, please know that if we have crossed paths in life, you have already provided me more than I could ever ask for. I believe our lives are a tapestry of the people we meet and the …

Treatment Meetings and Plan

Warning: This post is long! This is not the usual post where I dive into the emotional aspects of my experience. Rather, this is a pretty cut and dry description of my three weeks of meetings and calls to develop a treatment plan. During my 2014 recurrence, I wrote a similar (...yet less detailed) post about treatment decisions. I received a lot of messages from patients and family members of patients who found that post helpful. This is for that audience. My hope is that this very detailed explanation of my treatment meetings may shed some light on how much information is involved in informing a treatment plan. While I share a lot of detail, I want to note that this is my experience. Every individual's situation and decisions will be unique to them.

When the can doesn’t land as far as you hoped – another recurrence

Introduction: Living with brain cancer I always told people it was a matter of "When" not "If" my tumor would start growing again. It was one of the few certainties in a journey of uncertainty. During my recurrence in 2014, my tumor extended into the motor strip making a complete resection impossible. I had to …

Gratitude

On November 5th, 2014, I left Indonesia for what was supposed to be a 3-week Thanksgiving vacation. As most of you know, this vacation turned into a rollercoaster of treatments and recovery for my recurrent brain tumor. Now, two years later, I write this on November 5th, 2016 during my first night in Sukadana, Kalimantan …

Who I ride for…Please Support the 2016 Boston Brain Tumor Ride

Over 300 stories. 300 unique experiences. Patients, survivors, family, friends...everyone in some way had a connection to the devastation caused by brain tumors. To sit in a room with these 300 people was humbling because they represented a web of countless others whose lives have been impacted by a brain tumor. Last week, I was in …