Engines Are Back On

Thank you all for the support after my last post about the rough start to treatment. I appreciate all the messages as well as food that has now filled my fridge!

I’ve realized this has become the primary means most people receive updates regarding how I am feeling. After seeing a lot of people this week who still thought I was off treatment and not feeling well, I wanted to apologize for not posting any updates recently.

After we stopped the treatment and increased the steroid dose, the side-effects in my legs quickly dissipated. Once I was feeling better, my doctor and I decided to turn the engine back on and restart the treatment with the higher dose of steroids.

Since the 13th, we have been monitoring for any side-effects, and fortunately things have been good! I even got out to the SF Botanical Gardens and Dolores Park this past weekend. I’ve said this in previous posts, but I think the mental and physical connection to our health is so important. To get outside after being cooped up in the house was incredibly rejuvenating!

Since I have gone a few days without having the side-effects I experienced before, we are going to try decreasing the steroid dose. I’m still in a trial and error phase to discern whether the side-effects were from the treatment or withdrawal from the steroids. Regardless, feeling good and tolerating the medication matters more than cracking the mystery of the past couple weeks.

Again, I apologize for not posting an update sooner. While I will continue to post treatment updates, I hope to focus my writing on the psychosocial and other elements of my experience that I believe are more universal in building connection.

For now, the engines are back on, we’re making some course corrections when needed, and moving forward again.




One Reply to “Engines Are Back On”

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